March 1, 2010
I just got back from my trip to DC to March on Capitol Hill with other parents and family members of someone with TS. It was very empowering to see so many people fighting the fight! We were a very determined group and hopefully our hard work will pay off in a few weeks. We were asking for $15 million to be appropriated for research funding for Tuberous Sclerosis!
Posted by Cristina Fitzgerald. Posted In :
March on Capitol Hill
February 4, 2010
Things are moving right along and I now have 3 appointments set up in DC. I am just less than 3 weeks away so hopefully I can secure a few more.
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Posted by Cristina Fitzgerald. Posted In :
Meeting
January 27, 2010
I am very excited to post that I have secured my first appointment in DC with Congressman Sam Johnsons's Helath Policy Advisor.
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Posted by Cristina Fitzgerald. Posted In :
Meeting
January 21, 2010
February 23rd - 25th I will be in Washington DC with the TS Alliance Marching on Capitol Hill. We hope to secure $6 million in research funding for 2011. Check back here to see my updates!
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Posted by Cristina Fitzgerald. Posted In :
March on Capitol Hill
I am the mom to an amazing boy name Preston! He has TS and amazes us every day with what he can do. I am truly blessed to be his mother.
